St Augustine Family Photography | SMA Awareness

St Augustine Family Photography in downtown St Augustine, FL.  Just before the holidays, we received a phone call request for a family photography session.  Although this is a normal occurrence, especially before the holidays, this call was different.  The call came from the Hartley family, who instead of buying Christmas presents for each other, was donating a St Augustine Family Photography session to a family with a special needs child.  Discovering a high school acquaintance had a son diagnosed with SMA (Spinal Muscular Atrophy), this family wanted to give something priceless.  We were immediately grateful to be involved, and decided to match this act of goodwill by donating all of the photos to the Davis Family.  We met this amazing family in downtown St Augustine on a beautiful, sunny January day.  This awesome family of four has two little boys, Ty and Jackson.  Jackson, diagnosed with SMA, began a treatment program in Orlando, bringing the family down to Florida.  SMA is a disease that affects the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe.  But as we learned by meeting Jackson, it does not affect a person’s ability to think, learn, or interact with others.  Jackson is charismatic and charming.  With his beautiful, big blue eyes he watches, responds, and connects.  He smiles and laughs, and exudes happiness after a tickle from Dad or a flip upside down from Mom.  With SMA it can be uncomfortable for the child to be upright for long periods of time, so we had fun photographing the boys together in the grass, capturing some gorgeous images.  Not only were Mom and Dad incredible with Jackson, but big brother Ty was as well.  Ty was gentle and kind, but also had a blast playing with his little brother.  He was awesome throughout the shoot, enjoying running around and exploring the streets of St Augustine.  In our St Augustine Family Photography, we love to capture beautiful images of families; but for a deserving bunch like the Davis Family, it is truly an honor!  We wish the Davis Family all the best, and look forward to seeing you all again soon!  To learn more about Spinal Muscular Atrophy, and to find out how you can get involved, please check out curesma.org!

St Augustine Family Photography St Augustine Family Photography Kids

 

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